Priority setting

Questions the field must answer together.

INFANCY’s research priorities are developed through transparent, multidisciplinary processes that include clinical expertise, methodological rigor, technology insight, and family priorities.

01

Priority domains

  • ✓Developmentally appropriate dosing and targeting
  • ✓Short- and long-term safety
  • ✓Meaningful child- and family-centered outcomes
  • ✓Biomarkers and response prediction
  • ✓Comparative effectiveness and combination therapy
  • ✓Ethics, consent, assent, and equity
  • ✓Implementation, access, and health economics
  • ✓Data standards and long-term registries
02

How priorities are selected

Priorities should reflect clinical importance, family relevance, feasibility, scientific opportunity, equity, potential impact, and the value of international collaboration. INFANCY will publish the methods and participants used in each priority-setting process.

Founding note

The first board-approved research agenda, evidence review, steering group, and update schedule will be published here.

NEXT STEP

Contribute to priority setting

Bring an evidence gap, outcome question, implementation need, or family priority to the network.

Propose an initiative